Jodie Means Grace of God: Week 3 and 4 at home

My Face may be different, but my feelings the same
I laugh and I cry, and I take pride in my gains
I was sent here among you, to teach you to love
As God in the heavens, looks down from above
To Him I am no different, His love know no bounds
Its those here among you, in cities and towns
That judge me by standards that man has imparted
But this family I have chosen will help me get started
For I'm one of the children, so special and few
That came here to learn the same lessons as you
That love is acceptance it must come from the heart
We all have the same purpose, though not the same start
The Lord gave me life, to live and embrace
And I'll do it as you do but at my own pace

Thursday, November 12, 2009

Week 3 and 4 at home

Jodie's stitches in her stomach must've stretched a little bit, because every time we feed her she would reflux. Just to explain, her reflux was so severe that it caused neumonia in NICU, and if we didn't stop the stomach contents from coming out she would get neumonia again... So every two hours when I fed her, I made sure the tube stayed open for at least 20minutes. So feeding took an hour, I had an hour of "rest" inbetween. The other problem we faced was that when she refluxed we had to run and put the syringe back on, open the tube so that the contents will push up into the syringe and not to her lungs. With the vomiting continuing and her struggling to breathe with every feed all we had left was to pray.