Jodie Means Grace of God: Day 55 The Geneticist Arrives

My Face may be different, but my feelings the same
I laugh and I cry, and I take pride in my gains
I was sent here among you, to teach you to love
As God in the heavens, looks down from above
To Him I am no different, His love know no bounds
Its those here among you, in cities and towns
That judge me by standards that man has imparted
But this family I have chosen will help me get started
For I'm one of the children, so special and few
That came here to learn the same lessons as you
That love is acceptance it must come from the heart
We all have the same purpose, though not the same start
The Lord gave me life, to live and embrace
And I'll do it as you do but at my own pace

Wednesday, November 11, 2009

Day 55 The Geneticist Arrives

I have never felt so humiliated in my life. The geneticist arrived, camera in hand. She asked me to undress Jodie and of course everybody was staring. She was there for an hour and took about 30 pictures of all the "problems" she thought Jodie had. Flat thumbs, large fontanel, down slanting eyes, high palate, natal tooth, columella extending below nares, even her birthmark at the back of her head (which my son and husband has) was a problem. After an hour she took us into the office and sat us down and then the story started with Rubinstein Taybi. She confirmed that she thinks with Jodie's clinical features that she definitely has RTS. I couldn't breathe, I wanted to throw up.... How is it possible, has God forsaken me? We didn't say anything on our way home.....