My Face may be different, but my feelings the same
I laugh and I cry, and I take pride in my gains
I was sent here among you, to teach you to love
As God in the heavens, looks down from above
To Him I am no different, His love know no bounds
Its those here among you, in cities and towns
That judge me by standards that man has imparted
But this family I have chosen will help me get started
For I'm one of the children, so special and few
That came here to learn the same lessons as you
That love is acceptance it must come from the heart
We all have the same purpose, though not the same start
The Lord gave me life, to live and embrace
And I'll do it as you do but at my own pace

Jodie's Journey by Granny Engela!

Hello World - I am 20 months old!

Hello World - I am 20 months old!

Wednesday, November 11, 2009

Day 87 We are home NOW WHAT?

After 87 days of waiting we are home at last. We were shown in NICU how to feed Jodie with the g-tube (although the nurses there said they are not sure how to use it). I have to admit it was really scary. In NICU she cried every time we gave her milk through the tube, little did we know we were feeding her wrong. They told us that feeding will be quick and easy, it is just like the nasal tube, you just pop the milk in and everything will be fine BUT the g-tube is 5 times thicker than the NG tube and the milk went into her tummy within 2 minutes. I wonder how painfull it must be to have food pumped directly into your stomach within 2 minutes...... My hubby and I then started the big research on how to feed a baby with a g-tube AND MAN DID WE DO IT WRONG!!!! The milk was suppose to run into her tummy for a minimum of 20 minutes, and we had to make sure there was no air pumped into her tummy as well... Needless to say after two weeks of crying, screaming, praying we got it right. Hey, I can now safely say I am a g-tube feeding expert, and at last can help any mommy out there with advice. Jodie wasn't able to burp or vomit because she had a nissen fundo done.... The second day of us being home, my hubby and I were feeding her and within seconds she vomitted...... We just stared at each other..... How did that happen.... Just remember that when we got home Jodie didn't even want to touch a bottle, she had dysphagia (this means that she has trouble to swallow, and cannot stand anything in her mouth). We had a speech therapist in hospital that taught me how to do exercises in her mouth to let her get use to a bottle. So I then started the big exercises, every two hours. She didn't even drink 2mls.

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